Friday, July 19, 2013

Today was chaotic and stressful. I started my first dose of a two-week cycle of prednisone in the last ditch attempt to get rid of the swelling in my hands. I'm not sure I'll be able to sleep tonight and that just isn't good because my mind will wander and I'll worry . . .

We met with Samantha's pediatric gastroenterologist today to discuss her chronic reflux and issues related to aspirating. Since 2010 I have charted that every summer she winds up with a bacterial infection in her lungs just days after swim lessons. We give her a high dose of prednisone for a few days and then taper along with antibiotics and a concoction of inhalers. Last year it was the worst yet and the poor kid started second grade on 60 mg of prednisone. She was an emotional wreck.

But it happened again this year like clockwork. Although we got on top of it within hours of the second cough, it still took three weeks to stop. And this time we noticed the prednisone had no effect, which meant there was something else going on.

Today the doctor politely said that we should have done an endoscopy three years ago. We were all hoping that Samantha would outgrow this, however. So next week we see an ENT to check her adenoids. And depending on what the ENT sees we will have an endoscopy within a few weeks with or without an adenoidectomy.

The results of the endoscopy will then determine if Samantha has to do a PH pump study and/or if she'll need surgery to tighten her esophageal sphincter.

It's all so scary. I don't even want to have my child put under for the endoscopy. But then if we can fix all this we may be able to get rid of the cases of Pulmicort, Xoponex, containers of steroids, and the bottles of antibiotics she takes every year. It could change her life . . . I have to keep that in perspective.

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